COLUMBIA, South Carolina—Nearly 7 million Americans are living with Alzheimer’s dementia, according to the Alzheimer’s Association, and that number is expected to rise—a statistic that has gerontologist Macie Smith concerned about the ability of the medical community to provide comprehensive support for patients and their caregivers.
“Because our current health care system is not geriatric-centered, many medical professionals are not well informed about what supports are available to offer family caregivers,” Smith said. “There is a growing need for dementia-competent education that is practical, applicable and relatable.”
Smith knows this firsthand. After caring for her grandmother, who had dementia, it was important for Smith to share what she learned with other families to spare them from the struggle to find basic information on optimal care.
“African American caregivers are the least likely to have access to information, education and resources that will help guide their dementia caregiving journey,” she noted.
Her new book, "A Dementia Caregiver Called to Action: The Journey," is a concise yet comprehensive resource designed to address common questions and offer valuable insights throughout the caregiving journey.
In her book, Smith takes readers through the logical progression of a dementia care experience, beginning with how to recognize potential symptoms before the diagnosis and what questions to ask the individual’s primary care physician. She then describes what to expect after a dementia diagnosis, answers common questions and details a range of care options available to dementia patients.
“Although there’s not a cure for progressive types of dementia, like Alzheimer’s, there is care—your care,” Smith said. “So, here’s to getting ahead of the journey.”
“Macie has a unique way of supporting caregivers through real-world scenarios and practical guidance," Emmy-winning TV host and bestselling author Leeza Gibbons said. "I’ve seen her make the challenge much more manageable for many at the end of their ropes. If you need a basic starting position for dementia care, this book is for you.”